I was told in July 2010 that I have a rare form of Leukemia called Hairy Cell Leukemia. I was also told that if you are going to have leukemia, this is the kind to get. It's a lazy form of leukemia that takes it's time and in my case, didn't require immediate action. It's also highly treatable, with a very good prognosis.
After taking a few weeks to reconcile this new found diagnosis with the fact that I felt perfectly fine, I started doing some research. Because HCL is a such a rare form of leukemia, there isn't very many people to offer information or opinions on it. After much Googling, I found a doctor at the National Cancer Institute that is researching a cure for HCL.
I qualified for his clinical trial and am recieving treatment from NCI.

Thursday, January 27, 2011

1.5 miles in 2.5 hours

Yesterday was my first day of chemotherapy. The anxiety in anticipation of the chemo was far worse than the chemo itself. In fact, the drive to the hotel afterwards was worse than the chemo. A snow storm hit the Washington D.C. area yesterday afternoon and it literally shut down the entire city. My parents and I decided to get a hotel room about 1.5 miles from the hospital because of the snow. It took a painfully slow 2.5 hours to get there.

More chemotherapy today and for the next 4 days, hopefully it is as easy as today was.
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1 comment:

  1. Eat BendJanuary 27, 2011 at 2:56 PM

    It's another beautiful sunny day here in Redmond, send some of that snow our way! In customer service here we are all looking for excuses to run to the warehouse to get a glimpse of the sunshine. Glad to hear it's not as bad as you were fearing, scary stuff...thinking of you!

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